Alex, The Leukodystrophy Charity (Alex TLC) supports children and young people, and their families, with leukodystrophy. The majority of leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In some cases, they may cause death.
The charity runs a helpline and a support service including home visits to provide practical support, advice and information to families living with these conditions. Alex TLC also runs events to connect families and medical professionals and provides financial support to help families cope.
Global’s Make Some Noise is proud to fund the charity’s Community Support Worker role, providing support to children and young people with leukodystrophies and their families. This role provides vital emotional and practical support to families over the phone, on email, assisting at medical appointments and in the family home.
With your help, we can support projects like this one and many more across the UK.