Global’s Make Some Noise is supporting charities like Martin House, which exists to help children and young people with a life-limiting condition, along with their families.
The charity also offers the best possible end-of-life care, and supports families experiencing bereavement.
Every year, Martin House cares for more than 400 babies, children and young people, providing respite breaks at their hospice, giving families time to spend together, to relax, enjoy activities and outings, while the team provide specialist 24-hour care to their poorly child.
Sadly, the respite breaks have stopped due to the coronavirus pandemic, as families have had to self-isolate to shield their vulnerable children.
Martin House is still supporting families, providing emergency symptom control care and 24/7 advice on the phone. It also offers end-of-life care, remote bereavement counselling and they provide families with access to specially cooled bedrooms, so that families can stay with their child after they have died.
The pandemic has had a huge impact on the funding of Martin House, as their events have been cancelled and their charity stores closed, they need our help to continue to provide this essential service.
Maia has dystonia, which can cause very painful muscle spasms, and she became very poorly due to this condition at the beginning of lockdown. Martin House has been helping the family access specialist medical support remotely.
Her dad Jack* says:
“Maia had three emergency admissions to hospital at the start of lockdown with dystonic crisis. As a result, the medics tweaked her medications and wanted to observe her on a general ward. This was a scary concept, so we called Martin House to see if we could visit for symptom control, but we have Grace* who needs round-the-clock care, too, so this, understandably, wasn’t logistically possible at the moment. Martin House arranged for a video meeting to take place between a London specialist and ourselves, instead of us needing to visit the hospital, as intended. This has been very reassuring as, even though we can’t physically sort anything out for her at this time, we know something is in motion.”
*Names have been changed to protect the individuals’ identities.